Why this website?

During Sadie's illness we scoured the Internet searching for information about brain tumors, treatments, and, once she was terminal, other people's final days. All the personal stories we found were very comforting to us: not because they offered us hope, but because they helped us understand what Sadie was going through. This site is our way of contributing to others walking this frightening path. We hope Sadie's site helps make the journey a little less lonely.

What kind of tumor did Sadie have?

We aren't sure. Her MRIs suggested glioblastoma multiforme (GBM), but her biopsy was inconclusive. After a second and third opinion, her medical team concluded that she had either GBM or a supratentorial PNET. The biopsy seemed to favor PNET, and that's what they treated her for. Her post-treatment MRIs, and her ultimate outcome, seemed to indicate it was GBM after all.

Abstraction

We created this website to provide others with salient information about one girl's journey with a brain tumor. To protect our privacy and reduce distraction, we've left out almost all personal information about our family and Sadie's life outside of the tumor. Moreover, Sadie is not our daughter's real name, and the dates of Sadie's timeline have been shifted by several months (though the timing between events has been preserved exactly). We've maintained the veracity of the tumor information while retaining our privacy. We know most of you can understand and appreciate this.

Not a source of medical information

This website is intended purely as a source of anecdotal information. We are not providing medical or any other kind of advice. We are not responsible for anything that happens to you or your family as a result of your reading this website.

There: that should cover our back ends sufficiently.

Who was Sadie?

Why this website?

What kind of tumor did Sadie have?

Comment or question?

Sadie's journey

Sadie's final days

Information

Abstraction

Not a source of medical information